Huw Welcomes Support for People Living with Motor Neurone Disease in Bridgend.
Member of Parliament for Ogmore Huw Irranca-Davies has welcomed Bridgend County Borough Council’s decision to pledge its support for a charter which recognises the rights and priorities of people living with Motor Neurone Diseases (MND) and their carers.
Developed by the Motor Neurone Disease Association, this five-point charter sets out the standards for what good MND care should consist of. It aims also to raise awareness and understanding of this devastating condition.
Half of all people diagnosed with MND die within 14 months. This means around five people dies from motor neurone disease every day. MND is a terminal disease that can affect any adult of any age and has no known cure. The charter will help ensure that people with MND and their carers have access to timely and appropriate information, care and services.
The charter has been endorsed by leading medical institutions like the Royal College of General Practitioners, the Royal College of Nursing, the Association of British Neurologists and the Royal College of Speech and Language Therapists.
Huw said “Earlier this year the Borough’s Community Independence and Wellbeing Team, which features staff from BCBC and Abertawe Bro Morgannwg University Health Board, were awarded the MND Association’s “Extra Mile” award. By endorsing the Motor Neurone Disease Association’s charter Bridgend County Borough Council is building on the successes they have already achieved working with people who suffer from MND. It is a truly horrible disease and good services and information can make a real difference in the standards of living of people with MND. In backing the charter BCBC is helping to maximise the quality of life for people who must live with Motor Neurone Disease.”